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You Hold the Key to Unlocking the Secrets of the Heart

Donate to support families like Syed's

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Be the Hero Who Unlocks a Life-Saving Secret

Right now, families across Australia are living in a dangerous medical limbo. For Syed, a devoted father, the fear is constant. He has survived four separate sudden cardiac arrests – each time, his heart was restarted by a life-saving shock.  

But your support can ensure his children don't have to rely on luck.  

While genetic testing exists, it often identifies "Variants of Uncertain Significance" – genetic "typos" that doctors don't yet understand. This leaves parents like Syed in a state of high-stakes uncertainty, wondering if their children are truly safe to play sport or go to school.  

By donating today, you provide the clinical certainty they have been searching for.  

Your Power to Protect Families

Your $50 gift helps purchase the essential laboratory supplies needed to test genetic heart variants.

Your $100 gift helps build the Australian database so doctors around the world can diagnose patients in real time.
Your $1000 gift helps test and classify the variants that put families like Syed’s at risk – bringing them closer to life-saving answers.
Help Unlock the Secrets of the Heart

What your gift can do

When one-year-old Mehr stopped breathing, the screening test developed at the Victor Chang Cardiac Research Institute helped doctors identify Brugada syndrome, the same condition Syed lives with. Genetic testing then revealed her mother and older brother also carried the variant, ending the uncertainty and allowing the family to act before serious harm struck again.
The research didn't just save Mehr. It gave our family a future we might not have had." — Abhishek, Mehr's father.
Hundreds of Australian families are still living with that uncertainty. Your gift today helps change that.
Help Protect Families with Brugada Syndrome

Help Us Reach Our $600,000 Goal by 30 June

Syed Family Photo
Syed with Daughter
Syed with Son
Syed with Youngest Daughter
Syed and Youngest Son

We have set an ambitious target to classify 600 genetic variants this year. This work is arduous and resource-intensive, costing $1,000 to fund the classification of just one single variant.  

By giving today, you aren't just funding a laboratory; you are replacing a father’s constant anxiety with the clinical hope he needs to protect his children's future.  

Unlock a secret. Protect a family. Please give before 30 June. 

"I want my children to grow up with the confidence that medical science has a handle on this, allowing them to live full, fearless lives."

- Syed Ahemd
Father of four, living with Brugada Syndrome

Are you ready to unlock the secrets of the heart?

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